Bavaria
Hi fam, all is well here. I have to say that ny life right now is stressing me out quite a bit more than usual. I talked to Ellyn's Dr. and she thought it was a good idea to try the gluten free casein free diet with Ellyn, but to do it for six months instead of two and to eliminate all preservatives as well. Oh- Adina, do you think that would include jam? Does that sound like a dumb question? But when it says on the jar "strawberry PRESERVES" it makes you wonder and I haven't had time to look it up. So...it has been alot of cooking from scratch which isn't exactly convenient when you have basketball practice for Jane two nights a week and the games on a third. Besides that Ellyn has become very comfortable in the kitchen because I bring her in with me while I'm cooking and now she keeps trying to get into everything. She has started doing a bunch of other things too and I really can't tell if it's good because she's becoming curious about things or bad because she is now becoming destructo-elasta girl. I don't know that that is the best combo.
I did go in and spoke firmly to the EFMP manager about the amount of education/therapy Ellyn is getting. She will be four next week and we are not making progress. I arranged for all of my respite hours to be used having her caregiver go into the school and work with her one on one throughout the school day. We are setting up another meeting with the school and if that all fails there are more drastic steps that I am at the point I'm ready to take. We'll see. It just isn't fair to her not to have the help she needs. Well she just woke up so I had better go. Sorry, this is kind of a downer. I really just wanted to write and say we were alive and well, which we are. love, Brooke
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That is not a stupid question, Brooke. Most jams/preserves don't have preservatives and may say 'preservative-free' on the jar. They use citric acid (vitamin C) as a natural preservative, so they should be fine.
If there is anything we can send you from the states to make life easier for you, please let me know. I will happily make a trip to Trader Joes or wherever.
You are a wonderful advocate for Ellyn, she is lucky to have you. You are doing the absolute best by her - and there is no doubt that you will continue to ensure that she receives the best therapy. Hang in there.
Love you.
Adina